From NFL player Steve Gleason, a powerful, inspiring memoir of love, heartbreak, resilience, family, and remarkable triumph in the face of ALS
For readers of Amy Bloom’s In Love, Paul Kalanithi’s When Breath Becomes Air, and Kate Bowler's Everything Happens for a Reason.
In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that paralyzes the entire body. Doctors gave him three years to live. He was thirty-four years old. As Steve says, he is now ten years past his expiration date.
His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced. Writing using eye-tracking software, Gleason covers his pre-ALS life through the highs and lows of his NFL career with the New Orleans Saints, where he made one of the most memorable plays in Saints history, leading to a victory in the first post-Katrina home game, uplifting the city and launching him into football stardom. Then came his heartbreaking diagnosis. Gleason lost all muscle function, he can't speak without using a Stephen Hawking–type computer apparatus, and he can't even breathe on his own. This book captures Gleason and his wife Michel’s unmatched resilience as they reinvent their lives, refuse to succumb to despair, and face his disease realistically and existentially.
This unsparing portrait argues that a person's true strength does not reside solely in one’s body but also in the ability to face hopelessness and still be able to love and treasure life.